CCSVI
CCSVI Advocacy
In the fall of 2009, the recently published science of CCSVI and its theoretical relation to the MS disease process, combined with the possibility of substantial symptom improvement through CCSVI resolution, resulted in an unprecedented patient-advocacy for proper research into CCSVI and MS. Predictably, financially-compromised neurologists and some MS charities strongly opposed such non-drug research and made many denigrating and misleading statements about CCSVI.
To counter the anti-CCSVI campaign mounted by the neurological community, Direct-MS produced many essays and letters based on the information on CCSVI in the scientific literature. The misleading, and often false information on CCSVI produced by the neurological community and conservative columnists is discussed and countered in the documents linked below.
Essays and Letters Regarding CCSVI
- A Critique of Andre Picard’s Recent Article on CCSVI and Mr Mostic’s Death
- A Great Article on the Government’s Failure to Address the CCSVI issue and a Typical, Uninformed and Highly Biased, Rightwing Response to the Article.
- A New Disease Model for MS
- A Reply To Rob Breakenridge On Recent Calgary Herald Articles And Am 770 Chqr Broadcasts
- An Open Letter to the Authors of Chronic Cerebrospinal Venous Insufficiency and Multiple Sclerosis (Khan et al, 2010, Annals of Neurology)
- An Open Letter to the Honourable Gene Zwozdesky, Alberta Minister of Health Regarding the August 6, 2010, Alberta Health Services Report on MS and CCSVI
- An up close and personal account of Ashton Embry’s trip to Poland for his son to receive the Liberation Procedure
- Ashton Embry’s reply to an article in the Calgary Herald
- Ashton Embry’s reply to an article in the Montreal Gazette
- Beaudet Executive Summary
- Buffaloed: The anti-CCSVI Bias of the University of Buffalo Researchers and their Unsupported Interpretations
- CCSVI – A Huge Breakthrough in MS?
- CCSVI – Some More Thoughts
- CCSVI and Multiple Sclerosis: Integrating New Data to Help Guide Actions
- CCSVI Science – The Latest Results and their Relevance
- CCSVI, Autoimmunity and Nutrition
- Close-minded Negativity by MS Doctors Does Not Equate to Scientific Skepticism
- Comments on MSSOC’s Funding of CCSVI Research
- Comments on the National Post articles on Dr Zamboni and CCSVI by Blackwell and Corcoran
- Destined to Fail: What we know about the UBC CCSVI study
- Different Approaches to the Application of Science to Understanding and Treating Multiple Sclerosis – An Open Letter to Mark Freedman
- Final Thoughts on the Buffalo CCSVI Research Effort
- Hope and Elation – Frustration and Anger – Fear and Loathing: The Contrasting Emotional Responses to the Revolutionary Discoveries in MS Made by Dr Zamboni
- In-Depth Analysis of the “Summary Report – CIHR and MS Society of Canada Joint Invitational Meeting on Multiple Sclerosis Research
- Letter to Canadian Parliamentarians
- Letter to the Premier and Minister of Health of Alberta
- Letters to Alain Beaudet, Minister Aglukkaq and Deputy Minister Yeates regarding the CIHR/MSSC Report on CCSVI
- More Fear-Mongering from the University of Calgary Neurologists
- My reply to a letter from Bianca Weinstock-Guttman, MD and Robert Zivadinov, MD, PhD, FAAN
- New Data on CCSVI and Vitamin D Underscore the Need for Taking Action
- New Studies Show the MS Drugs Don’t Slow Progression
- Submission to the Parliamentary Subcommittee on Neurological Health
- The “Big Picture” Regarding the Rejection of Bill C-280
- The Actual Data from PREMiSe Do Not Support the Highly Publicized, Anti-CCSVI Claims and Warnings of the University of Buffalo Researchers
- The First Fatality of the Liberation War
- The Liberation War
- The Sad, Sad State of CCSVI Research in Alberta
- What the MS Society of Canada Does Not Want You to Know About their Finances
- Why Direct-MS Advocates that Persons with MS Should Get Tested and Treated for CCSVI As Soon As Possible
- Why National MS Societies Are Not Acting in the Best Interests of Persons with MS